Join The Rory Belle Foundation for our first worldwide 5k!

Support our board members as they run the Boston 5k on April 19th, or gather your friends and family to run your own 5k!

We are raising critical funds for gene therapy creation - a therapeutic that can significantly improve the lives of our individuals affected by NARS1 Disorder.

Donate or create a team here!

Think the best part of any event is the t-shirt? You can order your limited edition official 5k shirt to wear on race day here!

Share your photos and videos from your own 5k by tagging #RunforNARS1.