Access to Free Genetic Testing

Struggling with unexplained symptoms like seizures, feeding challenges, or movement challenges?

The Rory Belle Foundation has partnered with Probably Genetic to make genetic testing for undiagnosed patients more accessible. 

Apply for the no-cost genetic testing program below:

1. Describe the symptoms you or a loved one is experiencing.

2. Complete the rest of your profile.

3. See if you qualify - you’ll be notified via email!

Joy today and hope for the future, for every NARS1 family

At The Rory Belle Foundation, we believe that no family should face a NARS1 diagnosis alone. Together, we can build a community of strength, understanding, and hope. Join us in our mission to create a brighter future for all those affected by NARS1 disorder.

Our Research

About NARS1 Disorder

A Path to a Cure