Family & Caregiver Resources Print Resources NARS1 Disorder Introductory Pamphlet Understanding the Research Toolbox Research Resources Email us to coordinate blood and skin sample collection (more information on sample collection here)Tell your story through our patient registry, RARE-X (find out more about this very important project here) Past Virtual Family Meetings February 2025 April 2024 Other Video Resources Introduction to NARS1 Disorder & Genetic Diseases