A powerful night at Detroit’s Eastern Market brought together more than 500 guests and raised an incredible $200,000 for NARS1 research. Hosted by the Bedway family, the event was filled with community, storytelling, laughter, and hope, all helping to drive forward The Rory Belle Foundation’s mission.

Discover how scientists are using yeast to unravel the complexities of NARS1 Disorder, and what that could mean for future research, care, and hope for affected families.

Families, researchers, and clinicians came together in Croatia for the first-ever Rory Belle Foundation Family & Researcher Gathering on NARS1 Disorder.

We’re so proud to share that Dr. Ingrid Vallée, our very own scientific advisor at The Rory Belle Foundation, has had a major research paper published as part of her PhD.