0
Skip to Content
The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
Folder: About
Back
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
Folder: NARS1 Disorder
Back
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
Folder: Research
Back
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Folder: Giving
Back
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
Asparagine and NARS1: A Guide for Families
Information Leaflets Teri DeClercq 4/19/26 Information Leaflets Teri DeClercq 4/19/26

Asparagine and NARS1: A Guide for Families

An overview of asparagine in NARS1, including what it is, why it’s being explored, and what the upcoming clinical trial in France aims to understand. Available in multiple languages

Read More
Understanding the research toolkit
Information Leaflets Teri DeClercq 4/1/26 Information Leaflets Teri DeClercq 4/1/26

Understanding the research toolkit

We have a lot of tools in our research kit - learn about them here.

Read More
Understanding NARS1 Disorder Leaflet
Information Leaflets Teri DeClercq 4/20/19 Information Leaflets Teri DeClercq 4/20/19

Understanding NARS1 Disorder Leaflet

This useful leaflet explains what happens when there is a mutation in the NARS1 gene and how that causes NARS1 Disorder. Available in multiple languages.

Read More

The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220