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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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NARS1 Hospital Passport

Practical Care & Templates
Apr 20
Written by Teri DeClercq

A simple, personalised document to help clinicians understand your child and provide safe, informed care, especially in hospital or emergency settings.

Download here -

English

French

Spanish

Italian

Turkish

Bulgarian

German

Finnish

Dutch

Polish

Portuguese

Teri DeClercq
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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220