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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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About The Rory Belle Foundation
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Our Team
Transparency & Accountability
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
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Scientific Publications
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Our Research Priorities & Opportunities
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Virtual Family Meeting - February 2025

Family Meetings & Events
Feb 12
Written by Teri DeClercq
Teri DeClercq
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Review of Published NARS1 Literature - April 2025
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Video - Introduction to NARS1 Disorder and Genetic Diseases

The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

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