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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
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Access to Free Genetic Testing
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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
Folder: NARS1 Disorder
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
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Family Resources
Scientific Publications
Folder: Research
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A Path to a Cure
Our Research Priorities & Opportunities
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Understanding NARS1 Disorder Leaflet
Understanding NARS1 Disorder Teri DeClercq 11/1/25 Understanding NARS1 Disorder Teri DeClercq 11/1/25

Understanding NARS1 Disorder Leaflet

This useful leaflet explains what happens when there is a mutation in the NARS1 gene and how that causes NARS1 Disorder. Available in multiple languages.

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Video - Introduction to NARS1 Disorder and Genetic Diseases
Understanding NARS1 Disorder Teri DeClercq 12/5/24 Understanding NARS1 Disorder Teri DeClercq 12/5/24

Video - Introduction to NARS1 Disorder and Genetic Diseases

Join Genetic Councillor Student, Sam, as he talks through NARS1 Disorder - symptoms, genetics and family perspectives.

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220