Donate to The Rory Belle Foundation

Every donation helps us move one step closer to therapeutics & a cure.

Thanks to our incredible community, and their fundraising efforts, we have already:

  • Funded $170K into NARS1 research

  • Built a growing global registry and biobank

  • Connected scientists and clinicians worldwide

  • Brought families together through international gatherings

  • Supported progress toward future treatments

  • Raised awareness of this ultra-rare disorder and increase diagnosis by 5x since 2020.

We have only just begun

To keep building on this progress, we need your support, to drive research forward, open doors to drug trials, and stand beside every NARS1 family. Donate today.