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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
Folder: About
Back
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
Folder: NARS1 Disorder
Back
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
Folder: Research
Back
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Folder: Giving
Back
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
NARS1 Hospital Passport
Documents & Templates Teri DeClercq 4/20/26 Documents & Templates Teri DeClercq 4/20/26

NARS1 Hospital Passport

A simple, personalised document to help clinicians understand your child and provide safe, informed care, especially in hospital or emergency settings.

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Helping Us Connect with Your Clinician
Documents & Templates Teri DeClercq 4/20/26 Documents & Templates Teri DeClercq 4/20/26

Helping Us Connect with Your Clinician

Help us connect with clinicians who can support research and improve care for NARS1. Share these resources with your specialist to start the conversation. Available in multiple languages

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220