0
Skip to Content
The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
Folder: About
Back
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
Folder: NARS1 Disorder
Back
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
Folder: Research
Back
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Folder: Giving
Back
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
Drug Repurposing, Explained
Potential Therapies & Research Explained Teri DeClercq 8/26/26 Potential Therapies & Research Explained Teri DeClercq 8/26/26

Drug Repurposing, Explained

What if a medication that already exists could help with NARS1 Disorder? Watch Rachel explain drug repurposing and the research behind three promising candidates. For each one, take away a family guide and a clinical reference to share with your child's doctor.

Read More
Asparagine and NARS1: A Guide for Families
Potential Therapies & Research Explained Teri DeClercq 4/19/26 Potential Therapies & Research Explained Teri DeClercq 4/19/26

Asparagine and NARS1: A Guide for Families

An overview of asparagine in NARS1, including what it is, why it’s being explored, and what the upcoming clinical trial in France aims to understand. Available in multiple languages

Read More
Understanding the research toolkit
Potential Therapies & Research Explained Teri DeClercq 4/1/26 Potential Therapies & Research Explained Teri DeClercq 4/1/26

Understanding the research toolkit

We have a lot of tools in our research kit - learn about them here.

Read More
Review of Published NARS1 Literature - April 2025</span>
Potential Therapies & Research Explained Teri DeClercq 4/10/25 Potential Therapies & Research Explained Teri DeClercq 4/10/25

Review of Published NARS1 Literature - April 2025

Join genetic counselling student Sammy as he reviews the published literature on NARS1 disorder, covering key research findings and insights into the condition.

Read More

The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220