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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
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Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
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Rare-X
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Understanding the research toolkit

Potential Therapies & Research Explained
Apr 1
Written by Teri DeClercq
Understanding the research toolkit for NARS1 Disorder

Click here to view our research toolkit

Teri DeClercq
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Virtual Family Meeting - February 2026

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