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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Ways to Give
Matching Gifts Program
Blog
Shop
Contact
Donate
Folder: About
Back
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
Folder: NARS1 Disorder
Back
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
Family Resources
FAQs
Access to Free Genetic Testing
Folder: Research
Back
A Path to a Cure
Our Research Priorities & Opportunities
Scientific Publications
Research Grants
Events
Folder: Giving
Back
Ways to Give
Matching Gifts Program
Blog
Shop
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Donate
Review of Published NARS1 Literature - April 2025</span>
Useful Videos Teri DeClercq 4/10/25 Useful Videos Teri DeClercq 4/10/25

Review of Published NARS1 Literature - April 2025

Join genetic counselling student Sammy as he reviews the published literature on NARS1 disorder, covering key research findings and insights into the condition.

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Video - Introduction to NARS1 Disorder and Genetic Diseases
Useful Videos Teri DeClercq 12/5/24 Useful Videos Teri DeClercq 12/5/24

Video - Introduction to NARS1 Disorder and Genetic Diseases

Join Genetic Councillor Student, Sam, as he talks through NARS1 Disorder - symptoms, genetics and family perspectives.

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220