Virtual Family Meeting - February 2026


The Rory Belle Foundation - Virtual Family Meeting Feb 2026

In this meeting we covered, updates on current research, progress towards clinical trials, and the role of data and biosamples in moving work forward. We also shared practical insights to help families better understand the research landscape and what these developments may mean in real terms.

Download the slides from this meeting in your own language below:




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Understanding the research toolkit

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Review of Published NARS1 Literature - April 2025