Events
Upcoming Rory Belle Foundation Events
Events Calendar
Use our events calendar to see what’s coming up across the Rory Belle Foundation and the wider rare disease community. From our own events to global awareness days, you’ll also find opportunities to attend events local to you — helping raise awareness, connect with others, and be part of the progress.
If you think that there is an event missing from our calendar or you would like to attend an event on behalf of The Rory Belle Foundation, please let us know.
Check out some photos from past events!
2026 Scientific Symposium "Treatment of rare diseases: from research to patients"
"Treatment of rare diseases: from research to patients." Explore optimal preclinical models, therapeutic innovations, and post-treatment challenges.
ECRD 2026 (Prague & Online) - Conference on Rare Diseases
The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe.
2nd European Congress on Rare Diseases & Orphan Drugs
This two-day event uniting researchers, clinicians, industry leaders, policymakers, and patient advocates from across the globe.
The Translational Science of Rare Diseases Symposium
This symposium focuses on cutting-edge insights from basic and clinical science and their translation into the development of novel therapeutic strategies.
Westminster Health Forum: Rare Diseases in England Policy Conference
This conference will consider next steps for rare diseases policy in England.
It will be an opportunity for stakeholders and policymakers to discuss priorities emerging from the Department of Health and Social Care’s recently published England Rare Diseases Action Plan 2026.
World Epilepsy Day
Wear purple on 26th March to show your support for those with epilepsy. More information - https://purpleday.org/