You might have seen us talk about mouse models, and more recently, fruit fly research. But why are they so important?

This blog explains how scientists use these models to understand NARS1, why they’re a crucial step before any treatment can be tested, and how your fundraising is helping make this research possible.

Discover how scientists are using yeast to unravel the complexities of NARS1 Disorder, and what that could mean for future research, care, and hope for affected families.

Families, researchers, and clinicians came together in Croatia for the first-ever Rory Belle Foundation Family & Researcher Gathering on NARS1 Disorder.

We’re so proud to share that Dr. Ingrid Vallée, our very own scientific advisor at The Rory Belle Foundation, has had a major research paper published as part of her PhD.