Read the Lo Re family’s story, they have shared honestly of Gabriels difficulties since birth, but they don’t let this stop them. A heart warming story that will resonate with many.

Explore the inspiring story of the Jenson family as they navigate life with Talan, their son living with NARS1 Disorder. From early challenges to community support, learn how they find joy, routine, and hope every day.

Families, researchers, and clinicians came together in Croatia for the first-ever Rory Belle Foundation Family & Researcher Gathering on NARS1 Disorder.